Dealing with uncertainty: a care-ethical, phenomenological study of people with relapsing-remitting Multiple Sclerosis (2021-2024)

DOI

This dataverse includes the data collected for the study "Dealing with uncertainty: a care-ethical, phenomenological study of people with relapsing-remitting Multiple Sclerosis". The aim of the study was to understand how people with relapsing-remitting Multiple Sclerosis (RRMS) experience uncertainty and how the phenomenon of uncertainty appears in Dutch healthcare practice surrounding the care for people with RRMS. 17 people with a recent diagnosis of RRMS were interviewed about their experiences with uncertainty (2021-2022). 15 of them were prospectively followed and observed during hospital appointments (2021-2024). At this point, the anonymized interview transcripts are available and can be accessed upon request.

Identifier
DOI https://doi.org/10.17026/SS/7T9L36
Metadata Access https://ssh.datastations.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.17026/SS/7T9L36
Provenance
Creator E. van Reenen (ORCID: 0000-0001-8236-653X)
Publisher DANS Data Station Social Sciences and Humanities
Contributor van Reenen, Eva
Publication Year 2025
Rights DANS Licence; info:eu-repo/semantics/restrictedAccess; https://doi.org/10.17026/fp39-0x58
OpenAccess false
Contact van Reenen, Eva (University of Humanistic Studies)
Representation
Resource Type Dataset
Format application/pdf
Size 5505431
Version 1.0
Discipline Humanities; Life Sciences; Medicine
Spatial Coverage The Netherlands