Chronic Illness and Online Networking: expectations, assumptions, and everyday realities

DOI

Semi-structured interviews with 36 individuals with either type 1 or type 2 diabetes. The interviews address their diagnosis and current life with diabetes, their use of Facebook and consumption and production of online content in relation to diabetes and its impacts, if any, on their diabetes management.Given the recognised importance of social networks in health and wellbeing, the recent rise in popularity of online networking sites affords a timely opportunity to learn more about their role in self-care associated with long-term conditions. Focusing on diabetes as one of the most pressing healthcare priorities, and Facebook as currently the most popular social networking site, the project examines contextual factors that shape knowledge, attitudes and practices in relation to online networking and chronic illness. The Facebook site allows its users to create textual and visual content, connections, organisational and individual pages, and groups, and in this way facilitates maintenance of different network types. Our study of Facebook use by people with diabetes, and by government and third sector organisations, will help us understand the role of these different networks, and of the Internet, in shaping and supporting self-care practices outside formal healthcare organisations. The overall aim is to investigate systematically expert and lay perspectives on online networking and diabetes in the UK through the analysis of discourses and practices surrounding the use of Facebook. Methodologically, the project combines linguistic and sociological approaches and develops a framework for a critical and contextual study of online networking and health.

Data was collected through one-to-one semi-structured interviews lasting between 40 and 110 minutes.Interviews were audio recorded. Interviews took place in a variety of settings, including participants' homes, university offices, meeting rooms of Diabetes UK and occasionally in public cafes at the participants' requests. Where interview participants agreed, part of the interview involved accessing and viewing their Facebook account (Newsfeed, profile page, groups) using a laptop or their phone to discuss diabetes-related content that they accessed through Facebook. Unfortunately, the records of this (screenshots, browsing history) are not available through this archive.

Identifier
DOI https://doi.org/10.5255/UKDA-SN-851964
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=acc68065ce31cdfc523067abaea71ca9bf645b587505067165c5fbf1ef0b61ae
Provenance
Creator Koteyko, N, Queen Mary University of London
Publisher UK Data Service
Publication Year 2015
Funding Reference ESRC
Rights Nelya Koteyko, Queen Mary University of London; The Data Collection is available for download to users registered with the UK Data Service.
OpenAccess true
Representation
Resource Type Text
Discipline Social Sciences
Spatial Coverage UK East Midlands and South East; United Kingdom