PROFILES registry: Quality of life Hodgkin lymphoma May 2009

DOI

The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. The archive can be found on the following website: http://www.profilesregistry.nlIn 2009 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with Hodgkin lymphoma.The questionnaire was submitted to 185 patients who were diagnosed with endometrial cancer between 1999 and 2008. 150 patients completed the questionnaire.Questionnaires used:- Fill in Date- General Questions- Work- Cancer and Care- Comorbidity- EORTC-QLQ-C30 (version 3)- EORTC-disease specific lymfoom (CLL)(in development)- EQ5D- DS14- B-IPQ- FAS- HADS- IOC1/IOC2/IOC1+items2- EORTC-INFO25 (used to be EORTC-INFO26)- Internet

Date Submitted: 2016-05-30

The data are available at PROFILES Registry - Quality of life Hodgkin lymphoma May 2009'https://www.dataarchive.profilesregistry.nl/study_units/view/15

Identifier
DOI https://doi.org/10.17026/dans-zny-9w24
Metadata Access https://lifesciences.datastations.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.17026/dans-zny-9w24
Provenance
Creator L. van de Poll - Franse; S. Oerlemans
Publisher DANS Data Station Life Sciences
Contributor N.J.E. Horevoorts; CentERdata; Funding agency: ZonMW; Funding agency: NWO; Funding agency: Dutch Cancer Society
Publication Year 2016
Rights DANS Licence; info:eu-repo/semantics/closedAccess; https://doi.org/10.17026/fp39-0x58
OpenAccess false
Contact N.J.E. Horevoorts (Tilburg University)
Representation
Resource Type Dataset
Format application/x-spss-syntax; application/zip; application/x-sas-syntax; application/x-stata-13; application/pdf; application/x-spss-por; application/x-spss-sav
Size 1638; 23237; 2885; 4964; 822; 2310; 209753; 911723; 189910; 147644; 2120; 3537
Version 2.0
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Medicine; Social Sciences; Social and Behavioural Sciences; Soil Sciences