Accessing HIV post-exposure prophylaxis: gay and bisexual men in the UK describe their experiences

DOI

Detailed annotations of interviews with gay and bisexual men (not full transcripts). A full summary of the project and its findings is offered in the project description. In 2005 men completing the online version of the Gay Men's Sex Survey who said they had ever tried to get PEP were invited to take part in a 30 minute telephone interview about their experiences. Interviewing took place between August and December 2005. The interviews were undertaken by two researchers and were audio tape-recorded with consent. These were used for anaytical and reflective thematic analysis undertaken by two researchers working independently. Because of the responsive nature of this work, undertaken to help inform the direction of intervention development and advocacy at a particular stage in the policy process, the team did not have the time or resource available to make full transcripts of the recordings. In addition to the use of these synopsis notes, key quotes were retrieved, analysed and utilised directly from the audio in the final report prior to the destruction of the recordings - so the annotated notes that remain for each interview should mainly considered as synopses. As such, these are not verbatim accounts of the interviews.This qualitative investigation sought to describe and examineo Gay and Bisexual men’s experiences of trying to access post-exposure prophylaxis for HIV (PEP) in England and Wales, following a series of information campaigns in 2004/5. The sample was drawn from those men who had participated in the annual Gay Men’s Sex Survey by Sigma Research, and who had indicated an interest in talking about their experiences of trying to access PEP after completing the survey online in 2005. Thirty men were interviewed by telephone about the specific circumstances that led them to seek PEP, how they knew about it, what they did before asking for it, and a detailed account of what happened when they presented for PEP in a clinical setting. Thematic analysis of these individual accounts offers detailed insights into the different ways that men come to know about PEP and seek support following risk incidents, as well as revealing the disparities in service provision across England and Wales. Not all of the men who received PEP reported satisfactory experiences with health care and reception staff, and some were inappropriately refused treatment, or attended clinics where staff were unaware of the existence of PEP.

In 2005 men completing the online version of the Gay Men’s Sex Survey who said they had ever tried to get PEP were invited to take part in a 30 minute telephone interview about their experiences. Telephone interviewing enabled men from a range of geographical locations to be interviewed at a time and place that suited them. Initial screening ensured that only those who had attempted to access PEP in the UK following a sexual (rather than occupational) exposure took part. Interviewing took place between August and December 2005. The interviews were undertaken by two researchers and were audio tape-recorded with consent. Detailed annotations were made of the recordings which were used for analytical coding (in the case of close-ended questions) and reflective thematic analysis (in the case of open ended responses). At interview, men were asked to describe their knowledge and awareness of PEP prior to the most recent time they sought help in relation to a potential sexual exposure incident, their experiences of seeking advice or information about accessing PEP and what happened when they tried to access PEP. Men were also asked about their satisfaction with the clinical process, who else they had told about their experience, and what affect they thought it had on future HIV-related risk. Those who were prescribed PEP were asked about follow-up care and side effects. Men who had tried to access PEP more than once were asked about their most recent experience first, and then asked for a brief account of the previous occasions when they had attempted to access PEP.

Identifier
DOI https://doi.org/10.5255/UKDA-SN-852745
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=f27e78babc6f0c1d66b702ecc6a7ab38f28ea20e43193e1cc2a8f235af5c76f3
Provenance
Creator Dodds, C, University of Glasgow; Keogh, P, Open University; Weatherburn, P, London School of Hygiene and Tropical Medicine
Publisher UK Data Service
Publication Year 2017
Funding Reference Department of Health via CHAPS
Rights Catherine A Dodds, University of Glasgow; The Data Collection is available for download to users registered with the UK Data Service. All requests are subject to the permission of the data owner or his/her nominee. Please email the contact person for this data collections to request permission to access the data, explaining your reason for wanting access to do the data. Once permission is obtained, please forward this to the ReShare administrator.
OpenAccess true
Representation
Language English
Resource Type Text
Discipline Life Sciences; Medicine
Spatial Coverage England; Wales