Translations and Transformations in Patienthood: Cancer in the Post-genomics Era, 2015-2021

DOI

The project researched how patients and patient experiences have been impacted by transformed cancer treatments as a result of the post-genomic revolution. Social scientists have tended to focus on the social and ethical dimensions of genomic research, informed consent and expectations in emergent markets. The ultimate aim of this project, though, is to explore where and how patients feature in cancer research, clinical practice, service reorganisation, advocacy work and public health. It is an interdisciplinary project with science and technology studies, medical sociology and bioethics. This is a Senior Investigator Award awarded jointly to Anne Kerr (PI Leeds then Glasgow) and Sarah Cunningham-Burley (PI Edinburgh). The collection consists of interviews with patients, former patients, carers, advocates and professionals about their perspectives and experiences of targeted treatments for cancer.The project researched how patients and patient experiences have been impacted by transformed cancer treatments as a result of the post-genomic revolution. Social scientists have tended to focus on the social and ethical dimensions of genomic research, informed consent and expectations in emergent markets. The ultimate aim of this project, though, is to explore where and how patients feature in cancer research, clinical practice, service reorganisation, advocacy work and public health. It is an interdisciplinary project with science and technology studies, medical sociology and bioethics. This is a Senior Investigator Award awarded jointly to Anne Kerr (PI Leeds then Glasgow) and Sarah Cunningham-Burley (PI Edinburgh)

Data was collected via qualitative semi-structured interviews with patients, former patients, carers, advocates and professionals about their perspectives and experiences of targeted treatments for cancer.

Identifier
DOI https://doi.org/10.5255/UKDA-SN-856133
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=4eab1c80b4949ad317da24af9db6be7bae41f9c57fc60e5acfd3baafdd6e5e7f
Provenance
Creator Kerr, A, University of Glasgow; Chekar, C, University of Lancaster; Swallow, J, University of Edinburgh
Publisher UK Data Service
Publication Year 2022
Funding Reference Wellcome Trust
Rights Anne Kerr, University of Glasgow. Choon-Key Chekar, University of Lancaster. Julia Swallow, University of Edinburgh; The Data Collection is available from an external repository. Access is available via Related Resources.
OpenAccess true
Representation
Resource Type Text
Discipline Social Sciences
Spatial Coverage England; United Kingdom