Making Reading Real: Survey Data, 2022

DOI

What is the problem I am solving? How would you feel if, while reading this text, letters and words started merging or disappearing, making your reading impossible, and you knew there was nothing you could do to recover your reading ability? Frightening. Devastating. That is precisely the experience of millions of people in the world who have had a stroke or live with neurodegenerative conditions affecting the back of the brain – the area that controls vision. Science cannot repair a damaged brain, but in our research, I found a way to manipulate the text displayed in a reader device to compensate for this brain damage and make reading possible again. During this grant, we aim to convert these manipulation techniques into a commercially viable app to bring reading back to the lives of people with brain injury. For that purpose, we will release an MVP of the app and will collect anonymous user data to better understand the behaviour of the app beyond the clinical setting. The collection contains data collected via the app and online surveys – anonymous data. The app collected data from users (e.g., age, gender, country, type of brain injury). Data does not contain any personal identifiable data from users.What is the problem I am solving? How would you feel if, while reading this text, letters and words started merging or disappearing, making your reading impossible, and you knew there was nothing you could do to recover your reading ability? Frightening. Devastating. That is precisely the experience of millions of people in the world who have had a stroke or live with neurodegenerative conditions affecting the back of the brain – the area that controls vision. Science cannot repair a damaged brain, but in our research, I found a way to manipulate the text displayed in a reader device to compensate for this brain damage and make reading possible again. During this grant, we aim to convert these manipulation techniques into a commercially viable app to bring reading back to the lives of people with brain injury. For that purpose, we will release an MVP of the app and will collect anonymous user data to better understand the behaviour of the app beyond the clinical setting.

We used the survey service Typefrom. 95 individuals completed the questionnaires online. The survey was embedded into the reading app, which is an assistive technology to support people with brain related visual impairment.

Identifier
DOI https://doi.org/10.5255/UKDA-SN-856165
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=18a3fa112dcd37d343c29e960b1287fa8f99573f3f2827108df7a2ab21483a7a
Provenance
Creator Suarez Gonzalez, A, UCL
Publisher UK Data Service
Publication Year 2023
Funding Reference Economic and Social Research Council
Rights Aida Suarez Gonzalez, UCL; The UK Data Archive has granted a dissemination embargo. The embargo will end on 10 January 2024 and the data will then be available in accordance with the access level selected.
OpenAccess true
Representation
Language English
Resource Type Numeric; Text
Discipline Social Sciences
Spatial Coverage United Kingdom; United Kingdom