During the corona pandemic, we examined four times how caregivers of people with an intellectual disability were doing. Topics included well-being, contacts, and care tasks. In this additional study, we ask the same caregivers to answer questions about four topics in their own words as much as possible. We examine whether caregivers (1) and their family members (2) have recovered and what effects they still experience from the corona measures. This knowledge contributes to improving crisis policy, aftercare in the event of crises and support for caregivers. We also examine if caregivers arrange future care (3) and whether they experience changes in the provision of information and participation by healthcare providers (4) after the pandemic. This knowledge contributes to issues of scarcity and cooperation with caregivers in care for people with disabilities. We will disseminate and discuss the results with caregivers, professionals, policy makers, healthcare providers and researchers.

Caring and waving: longitudinal study on the consequences of restrictive COVID-19 measures for relatives of people with intellectual disabilities and their need for support RESEARCH QUESTION In this longitudinal study we examine the impact of the restrictive measures in residential care and in the home situation due to COVID-19 on the quality of life of relatives of people with intellectual disabilities and the support that these relatives need. The goal is to provide insight into bottlenecks and to provide them with better support. The insights obtained contribute to the development and safeguard of future policy that will relieve the task of family members and increase their quality of life. URGENCY Relatives are vulnerable in the COVID-19 pandemic. During the crisis they sometimes started taking care of their family member at home. Others could no longer visit them. Relatives provide extensive and long-term informal care and make an important social contribution. The results have added value for relatives, people with intellectual disabilities, professionals, policy makers and researchers. The infrastructure is available for future monitori ng. HYPOTHESIS COVID-19 measures entail risk factors for the quality of life of relatives, such as extensive and complex care tasks and a decline in social support.