National Child Development Study: Linked Administrative Data, Outpatient Attendance, Scottish Medical Records, 1996-2015: Secure Access

DOI

Abstract copyright UK Data Service and data collection copyright owner.The National Child Development Study (NCDS) is a continuing longitudinal study that seeks to follow the lives of all those living in Great Britain who were born in one particular week in 1958. The aim of the study is to improve understanding of the factors affecting human development over the whole lifespan. The NCDS has its origins in the Perinatal Mortality Survey (PMS) (the original PMS study is held at the UK Data Archive under SN 2137). This study was sponsored by the National Birthday Trust Fund and designed to examine the social and obstetric factors associated with stillbirth and death in early infancy among the 17,000 children born in England, Scotland and Wales in that one week. Selected data from the PMS form NCDS sweep 0, held alongside NCDS sweeps 1-3, under SN 5565. Survey and Biomeasures Data (GN 33004):To date there have been nine attempts to trace all members of the birth cohort in order to monitor their physical, educational and social development. The first three sweeps were carried out by the National Children's Bureau, in 1965, when respondents were aged 7, in 1969, aged 11, and in 1974, aged 16 (these sweeps form NCDS1-3, held together with NCDS0 under SN 5565). The fourth sweep, also carried out by the National Children's Bureau, was conducted in 1981, when respondents were aged 23 (held under SN 5566). In 1985 the NCDS moved to the Social Statistics Research Unit (SSRU) - now known as the Centre for Longitudinal Studies (CLS). The fifth sweep was carried out in 1991, when respondents were aged 33 (held under SN 5567). For the sixth sweep, conducted in 1999-2000, when respondents were aged 42 (NCDS6, held under SN 5578), fieldwork was combined with the 1999-2000 wave of the 1970 Birth Cohort Study (BCS70), which was also conducted by CLS (and held under GN 33229). The seventh sweep was conducted in 2004-2005 when the respondents were aged 46 (held under SN 5579), the eighth sweep was conducted in 2008-2009 when respondents were aged 50 (held under SN 6137) and the ninth sweep was conducted in 2013 when respondents were aged 55 (held under SN 7669). Four separate datasets covering responses to NCDS over all sweeps are available. National Child Development Deaths Dataset: Special Licence Access (SN 7717) covers deaths; National Child Development Study Response and Outcomes Dataset (SN 5560) covers all other responses and outcomes; National Child Development Study: Partnership Histories (SN 6940) includes data on live-in relationships; and National Child Development Study: Activity Histories (SN 6942) covers work and non-work activities. Users are advised to order these studies alongside the other waves of NCDS.From 2002-2004, a Biomedical Survey was completed and is available under End User Licence (EUL) (SN 8731) and Special Licence (SL) (SN 5594).Linked Geographical Data (GN 33497): A number of geographical variables are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. Linked Administrative Data (GN 33396):A number of linked administrative datasets are available, under more restrictive access conditions, which can be linked to the NCDS EUL and SL access studies. These include a Deaths dataset (SN 7717) available under SL and the Linked Health Administrative Datasets (SN 8697) available under Secure Access.Additional Sub-Studies (GN 33562):In addition to the main NCDS sweeps, further studies have also been conducted on a range of subjects such as parent migration, unemployment, behavioural studies and respondent essays. The full list of NCDS studies available from the UK Data Service can be found on the NCDS series access data webpage.  How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:For information on how to access biomedical data from NCDS that are not held at the UKDS, see the CLS Genetic data and biological samples webpage.Further information about the full NCDS series can be found on the Centre for Longitudinal Studies website. 

The NCDS linked Scottish Medical Records (SMR) datasets include data files from the NHS Digital Hospital Episode Statistics (HES) database for those cohort members who provided consent to health data linkage in the Age 50 sweep, and had ever lived in Scotland.The SMR database contains information about all hospital admissions in Scotland. The following datasets are available:SN 8761 (this study): National Child Development Study: Linked Administrative Data, Outpatient Attendance, Scottish Medical Records, 1996-2015: Secure Access (SMR00)SN 8762: National Child Development Study: Linked Administrative Data, Inpatient Attendance, Scottish Medical Records, 1981-2015: Secure Access (SMR01)SN 8763: National Child Development Study: Linked Administrative Data, Maternity Records, Scottish Medical Records, 1981-2002: Secure Access (SMR02)SN 8764: National Child Development Study: Linked Administrative Data, Prescribing Information System, Scottish Medical Records, 2009-2015: Secure Access (PIS)Researchers who require access to more than one dataset need to apply for them individually.Further information about the SMR database can be found on the Information Services Division Scotland SMR Datasets webpage.CLS/SMR Digital Sub-licence agreement:The linked SMR data have been processed by CLS and supplied to the UK Data Service (UKDS) under Secure Access Licence. Applicants wishing to access these data need to establish the necessary agreement with the UKDS and abide by the terms and conditions of the UKDS Secure Access licence. An additional condition of the licensing is that it is not permitted to link SMR data to NCDS data that include Scottish geographies.Non-straightforward requests to include additional data not held by UKDS would be handled by the CLS Data Access Committee and referred to the Public Benefit and Privacy Panel (PBPP) if necessary.

Main Topics:

This study covers outpatient attendance data.

No sampling (total universe)

Compilation/Synthesis

Identifier
DOI http://doi.org/10.5255/UKDA-SN-8761-1
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=377bf39b4e0822704735cc5fff3edbb7effd44e4d373e22c049a09d82b275a59
Provenance
Creator University College London, UCL Institute of Education, Centre for Longitudinal Studies; NHS Digital
Publisher UK Data Service
Publication Year 2021
Funding Reference Economic and Social Research Council
Rights <a href="https://www.nationalarchives.gov.uk/information-management/re-using-public-sector-information/uk-government-licensing-framework/crown-copyright/" target="_blank">© Crown copyright</a> held jointly with the Centre for Longitudinal Studies, UCL Institute of Education; <p class="MsoNormal"><span lang="EN-US">The Data Collection is available to users registered with the UK Data Service.<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">Commercial use is not permitted.<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">Use of the data requires approval from the data owner or their nominee. Users must apply for access via a Secure Access application.<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">Approved users must complete specialist training.<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">Users must be based in the UK when accessing data.<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">The Data Collection must be accessed via a secure virtual private network in a safe environment approved by the UK Data Service.<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">Users should indicate on their ESRC Research Proposal form all Safeguarded dataset(s) that they wish to access alongside the study (selected from the NCDS series page).<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">Additional conditions of use apply:<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">Linkage to explicit low-level Scottish geographies is not permitted, therefore users are not allowed to apply for the following studies:<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">5744 – National Child Development Study: Counties Data, 1974-2013: Special Licence Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">7846 – National Child Development Study: Age 42, Sweep 6 Geographical Identifiers, 1999-2000: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">7866 – National Child Development Study: Age 46, Sweep 7 Geographical Identifiers, 2004-2005: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">7867 – National Child Development Study: Age 50, Sweep 8 Geographical Identifiers, 2008-2009: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">7868 – National Child Development Study: Age 55, Sweep 9 Geographical Identifiers, 2001 Census Boundaries, 2013-2014: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">7869 – National Child Development Study: Age 55, Sweep 9 Geographical Identifiers, 2011 Census Boundaries, 2013-2014: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">8085 – National Child Development Study: Sweeps 3-9, 1974-2013, Townsend Index (LSOA) Linked Index: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">8218 – National Child Development Study: Age 16, Sweep 3 Geographical Identifiers, 1971 Census Boundaries, 1974: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">8219 – National Child Development Study: Age 16, Sweep 3 Geographical Identifiers, 1981 Census Boundaries, 1974: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">8220 – National Child Development Study: Age 23, Sweep 4 Geographical Identifiers, 1981: Secure Access<o:p></o:p></span></p> <p class="MsoNormal"><span lang="EN-US">8221 – National Child Development Study: Age 33, Sweep 5 Geographical Identifiers, 1991: Secure Access<o:p></o:p></span></p> <span lang="EN-US" style="font-size:11.0pt;line-height:107%;font-family:&quot;Calibri&quot;,sans-serif; mso-ascii-theme-font:minor-latin;mso-fareast-font-family:Calibri;mso-fareast-theme-font: minor-latin;mso-hansi-theme-font:minor-latin;mso-bidi-font-family:&quot;Times New Roman&quot;; mso-bidi-theme-font:minor-bidi;mso-ansi-language:EN-US;mso-fareast-language: EN-US;mso-bidi-language:AR-SA">8704 – National Child Development Study: Local Authority Data, 1958-1974: Secure Access</span>
OpenAccess true
Representation
Language English
Resource Type Numeric
Discipline Social Sciences
Spatial Coverage Scotland