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Kinship and genetic journeys: A study of the experiences of families who are ...
The approach was to follow families through the ‘journey’ they undertake when a child is referred to a genetic clinic. With some that meant being with them from those early... -
The pharmaceuticalisation of sleep and wakefulness: A social scientific inves...
In addition to documentary analysis, we undertook 23 focus groups (99 participants) with the following: those who might be expected to have particular views about sleep or... -
Bionetworking in Asia - International collaboration, exchange, and responsibl...
Over a prolonged period of time, bionetworkers create links between institutions in various countries and regions: hospitals, patient groups and research centres are linked into... -
Maintaining Dignity in Later Life: A Longitudinal Qualitative Study of Older ...
The aim of this study was to examine preparations for the end of life made by older people with supportive care needs and the factors that support or undermine a sense of... -
The support priorities of multiply excluded homeless people and their compati...
A key objective of the project was to compare and contrast the priorities and agendas of multiply excluded homeless people (MEHP) with those of a diverse range of agencies which... -
Focus group summaries on the lived economic experience of families with disab...
This dataset provides summary reports of focus group interviews conducted with persons with disabilities in an urban (Dong Da) and semi-urban (Thanh Tri) district of Hanoi,... -
Broadly engaging with tranquility: a high resolution pilot study for modellin...
This collection provides data collated through each of the 4 intial research stages undertaken. The subsequent modelling and mapping of this data through GIS, is also... -
Patient and surgeon decision-making in risk-reducing mastectomy: an ethical a...
Women who have made decisions to undergo. or not undergo, risk-reducing mastectomies, were interviewed alongside their surgeons. The original intention was to link the two... -
Food, families and work: taking a long view in understanding children and you...
Wave two of a qualitative longitudinal study of children's food and eating in employed families, resulting from interviews with parents (usually mothers) and interviews and... -
Life journeys: The role of interior dialogue and expression in negotiating te...
Data, including video and audio recordings, including of (i) people’s everyday lives and activities, and (ii) performative fieldwork techniques, that was generated through a... -
Chronic Illness and Online Networking: expectations, assumptions, and everyda...
Semi-structured interviews with 36 individuals with either type 1 or type 2 diabetes. The interviews address their diagnosis and current life with diabetes, their use of... -
Estimating census health geographies: using synthetic estimation with seconda...
Small area estimates of self assessed health and limiting long-term illness developed using multilevel small area estimation methodologies. Estimates are for varying... -
An ESRC/NIH health disparities study of discrimination and disparities in hea...
This archive contains the ESRC funded data collection (UK data) only. The data collection contains a state file consisting of 902 variables, 677 observations. The codebook... -
Consolidated standards of reporting trials of social and psychological interv...
This collection involves data from a project to develop Consolidated Standards of Reporting Trials of Social and Psychological Interventions: CONSORT-SPI. Namely, two phases of... -
Meaningful and measurable: understanding the capture, analysis and use of per...
This action research project worked with 8 health and social care organisations to support them to go through a cycle of capture, analysis and use of data on personal outcomes... -
Best practices in sharing individual level health research data in low and mi...
Transcripts of in-depth interviews and group discussions with managers, researchers, ethics committee members, field data collectors and community members on the issues around... -
Education and social outcomes of young people: promoting success
This project investigates the role of education in the determination of social benefits for young people. In particular, the project will follow the educational trajectories of... -
Best practices in sharing individual level health research data in low and mi...
Transcripts of interviews and focus groups with researchers and community members on experiences of and views about data sharing. As the data sharing movement gains momentum, we... -
Understanding and responding to adults bereaved following a drug or alcohol-r...
Qualitative data from 100 in-depth Interviews with 106 adults (including 6 couples) bereaved following a drug or alcohol-related death. The research is being led by researchers... -
Supply chains for medicines and health care supplies in Tanzania and Kenya
Data collection on supply chains for essential medicines and medical supplies to health facilities and shops was undertaken in four districts in three regions of Tanzania and...