Interviews: Genetic testing for mental disorders

DOI

Small number of indepth interviews with people living with a diagnosed mental disorder or carers of such a person, about their views on the potential availability of genetic tests for mental disorders, particularly when provided directly to consumers by commercial entities.This interdisciplinary project will examine societal impacts of two technological developments which are now beginning to intersect: genetic testing and the internet. The research will examine user perspectives on direct to consumer (DTC) genetic testing using existing and imminent genetic tests for psychiatric disorders as an informative case study. The collaboration provides an innovative research approach to studying potential impacts of DTC genetic testing on consumers, knowledge production and healthcare systems, three areas in which potential impacts have been identified but for which little empirical base exists. It critically examines relationships between information, empowerment and geneticisiation with regard to genetics and mental illness, and assesses the significance of DTC genetic testing in mediating this relationship. A post-graduate Research Fellow will work in year one with Professor Sally Wyatt, Maastricht University in a comprehensive context- and media-specific analysis of DTC genetic test sites, with special attention to sites offering genetic tests relevant to risk, diagnosis or treatment of psychiatric disorders. In year two, the Research Fellow will work with Dr. Susan Kelly, Egenis, University of Exeter, to conduct service user led research with mental health user communities including persons living with a psychiatric diagnosis, family members, advocates, and health care professionals.

Indepth interviews

Identifier
DOI https://doi.org/10.5255/UKDA-SN-851592
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=8024c5b501da069f7bde584d14472032897d47897aa5bf24d7fcdf4e20683075
Provenance
Creator Kelly, S, University of Exeter; Harris, A
Publisher UK Data Service
Publication Year 2014
Funding Reference ESRC
Rights Susan Kelly, university of exeter; The Data Collection only consists of metadata and documentation as the data could not be archived due to legal, ethical or commercial constraints. For further information, please contact the contact person for this data collection.
OpenAccess true
Representation
Resource Type Text
Discipline Social Sciences
Spatial Coverage Southwest England; United Kingdom