Exploring the experiences of self-determination of individuals with mild intellectual disabilities and epilepsy

DOI

These files contain the data of a study on self-determination of people with mild intellectual disabilities and drug-resistant epilepsy using Interpretative Phenomenological Analysis.

Method: Interpretative Phenomenological Analysis was applied to investigate the lived experiences with respect to self-determination of people with mild intellectual disabilities and drug resistant epilepsy. We used semi-structured interviews to collect the data. Data analysis consisted of the following stages: 1. Analysis of each separate interview on descriptive, linguisticand conceptual level and formulation 2. Identification of emergent themes of each interview 3. Clustering and formulation of themes and interconnectedsubthemes of each interview 4. Comparison of themes and narratives across interviews Universe: The group of people were adult men and women with a mild to borderline intellectual disability and drug-resistant epilepsy from the Netherlands. Ethical approval was provided by the Ethics Review Board of Tilburg University (RP305)).

Identifier
DOI https://doi.org/10.34894/WFCVSO
Related Identifier IsCitedBy https://doi.org/10.1111/jar.13151
Metadata Access https://dataverse.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.34894/WFCVSO
Provenance
Creator Haenen, Alexandra; Frielink, Noud ORCID logo; van Ool, Jans; Tan, Francis; Embregts, Petri ORCID logo
Publisher DataverseNL
Contributor Haenen, Alexandra; Tilburg University; DataverseNL
Publication Year 2024
Rights CC-BY-4.0; info:eu-repo/semantics/openAccess; http://creativecommons.org/licenses/by/4.0
OpenAccess true
Contact Haenen, Alexandra (Tranzo, Tilburg School of Social and Behavioral Sciences, Tilburg University)
Representation
Resource Type Interview data; Dataset
Format application/pdf
Size 157856; 586613; 471426; 116684; 290102; 538260; 496862; 502620; 47121
Version 1.0
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Social Sciences; Social and Behavioural Sciences; Soil Sciences