1970 British Cohort Study: Linked Health Administrative Datasets (Hospital Episode Statistics), England, 1997-2017: Secure Access

DOI

Abstract copyright UK Data Service and data collection copyright owner.The 1970 British Cohort Study (BCS70) began in 1970 when data were collected about the births and families of babies born in the United Kingdom in one particular week in 1970. Since then, there have been nine further full data collection exercises in order to monitor the cohort members' health, education, social and economic circumstances. These took place when respondents were aged 5 in 1975, aged 10 in 1980, aged 16 in 1986, aged 26 in 1996, aged 30 in 1999-2000 (SN 5558), aged 34 in 2004-2005, aged 42 in 2012 and aged 46 in 2016-18. A range of sub-sample and supplementary surveys have also been conducted, and a separate dataset covering response to BCS70 over all waves is available under SN 5641, 1970 British Cohort Study Response Dataset, 1970-2012.Further information about the BCS70 and may be found on the Centre for Longitudinal Studies website. As well as BCS70, the CLS now also conducts the NCDS series.How to access genetic and/or bio-medical sample data from a range of longitudinal surveys:For information on how to access biomedical data from BCS70 that are not held at the UKDS, see the CLS Genetic data and biological samples webpage.

In 2012, consent was sought for data linkage of health administrative records from the Hospital Episode Statistics (HES) to survey data for cohort members in the 1970 British Cohort Study (BCS70). The main aim of this data linkage exercise is to enhance the research potential of the study, by combining administrative record with the rich information collected in the surveys. The 1970 British Cohort Study: Linked Health Administrative Datasets (Hospital Episode Statistics), England, 1997-2017: Secure Access contains information about all hospital admissions in England. The following linked HES data are available: 1)          Accident and Emergency (A&E) The A&E dataset details each attendance to an Accident and Emergency care facility in England, between 01-04-2007 and 31-03-2017 (inclusive). It includes major A&E departments, single speciality A&E departments, minor injury units and walk-in centres in England. 2)          Admitted Patient Care (APC)The APC data summarises episodes of care for admitted patients, where the episode occurred between 01-04-1997 and 31-03-2017 (inclusive). 3)          Critical Care (CC)The CC dataset covers records of critical care activity between 01-04-2009 and 31-03-2017 (inclusive). 4)          OutPatient (OP)The OP dataset lists the outpatient appointments between 01-04-2003 and 31-03-2017 (inclusive).CLS/ NHS Digital Sub-licence agreement NHS Digital has given CLS permission for onward sharing of the Next Steps/HES dataset via the UKDS Secure Lab. In order to ensure data minimisation, NHS Digital requires that researchers only access the HES variables needed for their approved research project. Therefore, the HES linked data provided by the UKDS to approved researchers will be subject to sub-setting of variables. The researcher will need to request a specific sub-set of variables from the Next Steps HES data dictionary, which will subsequently make available within their UKDS Secure Account. Once the researcher has finished their research, the UKDS will delete the tailored dataset for that specific project. Any party wishing to access the data deposited at the UK Data Service will be required to enter into a Licence agreement with CLS (UCL), in addition to the agreements signed with the UKDS,  provided in the application pack. Latest edition informationFor the second edition (September 2022) 8 previously unavailable variables have been added to the A&E, APC and OP data files. The variable list has also been updated to reflect the changes.

Main Topics:

The study includes linked administrative data and medical records.

No sampling (total universe)

Compilation/Synthesis

Identifier
DOI http://doi.org/10.5255/UKDA-SN-8733-2
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=a1305f6614beca36acc65f61a7cd90348e97f8de2f3d914e9603c3280202ae00
Provenance
Creator University College London, UCL Institute of Education, Centre for Longitudinal Studies; NHS Digital
Publisher UK Data Service
Publication Year 2020
Funding Reference Economic and Social Research Council
Rights <a href="https://www.nationalarchives.gov.uk/information-management/re-using-public-sector-information/uk-government-licensing-framework/crown-copyright/" target="_blank">© Crown copyright</a> held jointly with the Centre for Longitudinal Studies, UCL Institute of Education; <p>The Data Collection is available to UK Data Service registered users subject to the <a href="https://ukdataservice.ac.uk/app/uploads/cd137-enduserlicence.pdf" target="_blank">End User Licence Agreement</a>.</p><p>Commercial use is not permitted.</p><p>Use of the data requires approval from the data owner or their nominee. Users must apply for access via a Secure Access application.</p><p>Use of the data requires the Lead Researcher to request a one-time bespoke subset of variables per project, for which approval is requested from the data owner or their nominee. If approved, the researcher(s) will be able to access the bespoke dataset via their Secure Lab project area.&nbsp;<br></p><p>Approved users must complete specialist training.</p><p>Users must have a UK HE or FE affiliation and must be based in the UK when accessing data</p><p>The Data Collection must be accessed via a secure virtual private network in a safe environment approved by the UK Data Service.</p><p>Users should indicate on their Research Project Application form all Safeguarded dataset(s) that they wish to access alongside the study (selected from the&nbsp;<a href="https://beta.ukdataservice.ac.uk/datacatalogue/series/series?id=200001#!/access-data" target="_blank">1970 British Cohort Study series webpage</a>).</p><p>Additional conditions of use:</p><p class="MsoNormal">I agree not to use nor attempt to use the Data Collections to identify the individuals from which the study sample was selected, nor to claim to have done so.<o:p></o:p></p><p> </p><p class="MsoNormal">I agree not to link between the research identifiers supplied by the UK Data Service [BCSID] and any other identifiers previously issued.<o:p></o:p></p>
OpenAccess true
Representation
Language English
Discipline Social Sciences
Spatial Coverage England