Despite the urgent need for palliative care for patients with advanced chronic obstructive pulmonarydisease (COPD), it is not yet daily practice. In the COMPASSION study, the effect on patient outcomes as well as the implementation process of integrated palliative care in COPD was assessed. Eight hospital regions in the Netherlands were randomized. Healthcare professionals within intervention regions received a training on how to implement palliative care elements, namely identification of palliative patients, advance care planning, multidimensional assessment, symptom management and care coordination. Palliative patients were identified using the ProPal-COPD tool during a hospital admission for an acute exacerbation of COPD. Study data were also used to externally validate this tool.Questionnaires were completed by patients at baseline, after 3 and 6 months, and medical records assessed after 12 months. Outcome measures are: FACIT-Pal, FACIT-Sp-12, CCQ, HADS, satisfaction with care (NRS), patient goals of care (open question), acute healthcare use, survival status (within 1 year) and place of death.Three different data sets are available upon request:- Cross sectional data of 445 patients admitted to the hospital: demographic and clinical baseline characteristics, PROMs at baseline.- Demographics, Propal-COPD indicators and survival data of 500 patients.- Trial data of 217 patients with a positive Propal-COPD score: demographic and clinical baseline characteristics, PROMs at baseline, after 3 and 6 months, medical records data on acute healthcare use.Also, a SPSS syntax file on the calculation of total scores of PROMs used is available.

Date Submitted: 2022-05-04