PROFILES registry: Quality of life multiple myeloma May 2010

DOI

The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. The archive can be found on the following website: http://www.profilesregistry.nlIn 2010 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with multiple myeloma.The questionnaire was submitted to 126 patients who were diagnosed with multiple myeloma between 1999 and 2009. 88 patients completed the questionnaire.Questionnaires used:- General Questions- Lifestyle- Activities- Work- Cancer and Care- Comorbidity- Insurance- EORTC-QLQ-C30 (version 3)- EORTC-disease specific myeloom- FAS- HADS

Date Submitted: 2016-06-06

The data are available at PROFILES Registry - 'Quality of life multiple myeloma May 2010' https://www.dataarchive.profilesregistry.nl/study_units/view/80

Identifier
DOI https://doi.org/10.17026/dans-zhk-7raf
Metadata Access https://lifesciences.datastations.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.17026/dans-zhk-7raf
Provenance
Creator L. van de Poll - Franse; S. Oerlemans
Publisher DANS Data Station Life Sciences
Contributor N.J.E. Horevoorts; Jonker-Driessen Foundation; ZonMW (the Netherlands organization for health research and development); NWO (the Netherlands Organization for Scientific Research)
Publication Year 2016
Rights DANS Licence; info:eu-repo/semantics/closedAccess; https://doi.org/10.17026/fp39-0x58
OpenAccess false
Contact N.J.E. Horevoorts (Tilburg University)
Representation
Resource Type Dataset
Format application/pdf; application/zip; application/x-spss-syntax; application/x-stata-13; application/x-spss-por; application/x-spss-sav; application/x-sas-syntax
Size 644718; 21385; 2885; 822; 2310; 98450; 81916; 67015; 3537
Version 2.0
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Medicine; Social Sciences; Social and Behavioural Sciences; Soil Sciences