A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis

DOI

This dataset includes patient and clinical characteristics, and questionnaire responses of n=107 patients whom participated in the study: "A head-to-head comparison of the adult EQ-5D-5L and youth EQ-5D-Y-5L in adolescents with idiopathic scoliosis". Patients were treated with a brace for their scoliosis during this study.

Patient characteristics include self-reported characteristics including age, sex, education, BMI. Clinical characteristics include cobb angle at diagnosis, at initiation of bracing, at inclusion in this study, and Lenke classification. Questionnaires include a first measurement of the EQ-5D-5L, EQ-5D-Y-5L, the corresponding Visual Analogue Scales, the SRS-22r (scoliosis-specific questionnaire). A second measurement of these questionnaires was obtained at least 7-14 days after completions of the first; approximately 75% of patients responded to the second measurement.

The data are sensitive since they involve personal information of patients. There are restrictions on use by commercial parties and on sharing openly, based on (inter)national laws and regulations and written informed consent. Therefore these data (and additional clinical data) are only available upon signing a Data Transfer Agreement (see Terms of Access).

Identifier
DOI https://doi.org/10.34894/PDJZXH
Metadata Access https://dataverse.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.34894/PDJZXH
Provenance
Creator Joshua M. Bonsel ORCID logo; Charles M.M. Peeters ORCID logo; Max Reijman ORCID logo; Joost P.H.J. Rutges (ORCID: 0000-0002-9452-415X); Diederik H.R. Kempen ORCID logo; Jan A.N. Verhaar ORCID logo; Adriaan K. Mostert; Christopher Faber; Gouke J. Bonsel ORCID logo
Publisher DataverseNL
Contributor Bonsel, Joshua
Publication Year 2024
Rights info:eu-repo/semantics/openAccess
OpenAccess true
Contact Bonsel, Joshua (erasmusmc.nl)
Representation
Resource Type Survey data; Dataset
Version 1.0
Discipline Life Sciences; Medicine
Spatial Coverage The Netherlands