“Are you listening?”: Experiences shared online by family caregivers of patients in the palliative phase during the Covid-19-pandemic - Dataset

DOI

In this study, we investigated the experiences of family caregivers of patients in the palliative phase during the first wave of the Covid-19-pandemic in the Netherlands (March-June 2020). We analysed social media posts and online newspaper articles to investigate family caregivers' experiences. The dataset published here contains 357 Tweet IDs, 20 anonymised Facebook posts and 17 online newspaper articles. 18 forum posts were also analysed in this study, but those could not be made available due to the terms and services of the forum platforms.

Identifier
DOI https://doi.org/10.17026/LS/BWA9ZH
Metadata Access https://lifesciences.datastations.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=doi:10.17026/LS/BWA9ZH
Provenance
Creator Hoffstädt, Hinke E. ORCID logo; Verhoef, Mary-Joanne; Akkermans, Aranka; van der Steen, Jenny T.; Stoppelenburg, Arianne; de Vries, Sita; de Graaf, Everlien; Teunissen, Saskia C.C.M.; Hartog, Iris D.; van der Linden, Yvette M.
Publisher DANS Data Station Life Sciences
Contributor Hoffstädt, Hinke
Publication Year 2024
Rights CC-BY-4.0; info:eu-repo/semantics/openAccess; http://creativecommons.org/licenses/by/4.0
OpenAccess true
Contact Hoffstädt, Hinke (Leiden University Medical Center, Center of Expertise in Palliative Care)
Representation
Resource Type Dataset
Format application/pdf; application/vnd.oasis.opendocument.spreadsheet
Size 265145; 19227
Version 2.0
Discipline Life Sciences; Medicine