Exploring Diagnosis: Healthcare Professionals' Diagnostic Decision-Making, 2017-2018

DOI

Exploring Diagnosis is a research project based at the University of Exeter, focussing on the role that diagnosis plays in individual and professional understandings of health and illness using autism spectrum disorder diagnosis as a case study. We examined how healthcare professionals (HCPs) diagnose autism in practice by observing post-assessment meetings in specialist autism assessment teams. These meetings (N=18) were followed up by 16 interviews with HCPs involved in the observed team meetings.Exploring Diagnosis is a research project based at the University of Exeter, focussing on the role that diagnosis plays in individual and professional understandings of health and illness using autism spectrum disorder diagnosis as a case study. This project explores adults' and clinicians’ experiences of the utility and consequences of diagnostic categorisation. Autism diagnosis is particularly relevant because the label is increasingly applied, the diagnosis has clear costs and benefits, and its application is frequently contested. It is important to ask why, if, and how, diagnosis is of benefit. The outputs of the Exploring Diagnosis project are: a series of academic articles, two books, one report for clinicians, three short films exploring the themes of Diagnosis, Neurodiversity and Art and a short animation about autism assessment. Datasets included: Interviews with autistic adults (IWAA); Pupil’s attitudes to Autistic and ADHD peer (PAAAP); and Healthcare Professionals' diagnostic decision-making: observational and interview data (HCPDD).

We purposively sampled to recruit teams who specialised in autism assessment. All teams were located in England. Two teams specialised in adult assessment; two in children and young people’s assessment. All sites were NHS providers. Written informed consent was obtained from all participants. Assessment team meetings: 18 autism assessment team meetings were observed, audio-recorded and transcribed. The number of cases discussed at each meeting varied from 1 to 9, and in total the observations provided data related to 88 cases and documented over 19 hours of meeting time. Patients and families were not present at any meeting. Interviews: Follow up discussions with HCPs explored the trajectory of particular cases raised in assessment team meetings and elicited HCPs’ perspectives on decision-making. 16 HCPs involved in team meetings observed by the researcher were interviewed. HCPs were asked about the social, psychological and systemic/institutional influences that they considered relevant to their diagnostic decisions. A semi-structured approach was used.

Identifier
DOI https://doi.org/10.5255/UKDA-SN-855227
Metadata Access https://datacatalogue.cessda.eu/oai-pmh/v0/oai?verb=GetRecord&metadataPrefix=oai_ddi25&identifier=dea0c0ce069e88c7d411db2509eb0903cffb80cf66f514e4ff3aeee1d43a826d
Provenance
Creator Hayes, J, University of Exeter
Publisher UK Data Service
Publication Year 2021
Funding Reference Wellcome Trust
Rights Jennie Hayes, University of Exeter; The Data Collection is available for download to users registered with the UK Data Service. All requests are subject to the permission of the data owner or his/her nominee. Please email the contact person for this data collection to request permission to access the data, explaining your reason for wanting access to the data, then contact our Access Helpdesk.
OpenAccess true
Representation
Language English
Resource Type Text
Discipline Social Sciences
Spatial Coverage England; United Kingdom