PROFILES registry: Quality of life non-Hodgkin lymphoma November 2009

The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. In 2009 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with non-Hodgkin lymphoma. The questionnaire was submitted to 326 patients who were diagnosed with non-Hodgkin lymphoma between 2007 and 2009. 221 patients completed the questionnaire.

Questionnaires used: - General Questions - Work - Lifestyle - Activities - Cancer and Care - Comorbidity - Work - EORTC-QLQ-C30 (version 3) - EORTC-disease specific lymfoom (CLL)(in development) - EQ5D - DS14 - B-IPQ - FAS - HADS - EORTC-INFO25 (used to be EORTC-INFO26) - Internet

Identifier
DOI https://doi.org/10.17026/dans-zcu-3uyw
PID https://nbn-resolving.org/urn:nbn:nl:ui:13-jgqm-r5
Related Identifier https://www.dataarchive.profilesregistry.nl/study_units/view/24
Metadata Access https://easy.dans.knaw.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=oai:easy.dans.knaw.nl:easy-dataset:64910
Provenance
Creator Poll - Franse, L. van de; Oerlemans, S.
Publisher Data Archiving and Networked Services (DANS)
Contributor Jonker-Driessen Foundation; Funding agency: NWO; Funding agency: ZonMW
Publication Year 2016
Rights info:eu-repo/semantics/closedAccess; DANS License; https://dans.knaw.nl/en/about/organisation-and-policy/legal-information/DANSLicence.pdf
OpenAccess false
Representation
Language English
Resource Type Dataset
Format SAV; PDF; SPS; SAS
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Psychology; Social Sciences; Social and Behavioural Sciences; Soil Sciences
Spatial Coverage The Netherlands; Limburg; Noord-Brabant