The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. The archive can be found on the following website: www.profilesregistry.nl
The current research project studied the quality of life in colorectal cancer survivors diagnosed between 2000 and 2009. Questionnaires used were:
- General Questions
- Work,
- Lifestyle,
- Nutritional questions
- Activities,
- Cancer and Care,
- Comorbidity,
- EORTC-QLQ-C30 (version 3)
- EORTC-disease specific colorectal (version 2.1)
- Personality (DS14),
- Fatigue (FAS),
- Anxiety and Depression (HADS),
- Beliefs about Medicine Questionnaire (BMQ)