PROFILES registry: Quality of life non-Hodgkin lymphoma May 2009

The PROFILES registry offers scientific data in the area of medical psychology and more specific on quality of life of cancer survivors. The PROFILES registry is open to academics anywhere in the world for scientific purposes, free of charge. The archive can be found on the following website: http://www.profilesregistry.nl

In 2009 a questionnaire has been composed treating the subjects health-related quality of life, use of health care and satisfaction with care in patients who had been diagnosed with non-Hodgkin lymphoma. The questionnaire was submitted to 898 patients who were diagnosed with endometrial cancer between 1999 and 2008. 715 patients completed the questionnaire.

Questionnaires used: - Fill in Date - General Questions - Work - Cancer and Care - Comorbidity - EORTC-QLQ-C30 (version 3) - EORTC-disease specific lymfoom (CLL)(in development) - EQ5D - DS14 - B-IPQ - FAS - HADS - IOC1/IOC2/IOC1+items2 - EORTC-INFO25 (used to be EORTC-INFO26) - Internet

Identifier
DOI https://doi.org/10.17026/dans-z7d-uskj
PID https://nbn-resolving.org/urn:nbn:nl:ui:13-alsm-rf
Related Identifier https://www.dataarchive.profilesregistry.nl/study_units/view/12
Metadata Access https://easy.dans.knaw.nl/oai?verb=GetRecord&metadataPrefix=oai_datacite&identifier=oai:easy.dans.knaw.nl:easy-dataset:64857
Provenance
Creator Poll - Franse, L. van de
Publisher Data Archiving and Networked Services (DANS)
Contributor CentERdata; Funding agency: NWO; Funding agency: ZonMW; Funding agency: Dutch Cancer Society
Publication Year 2016
Rights info:eu-repo/semantics/closedAccess; DANS License; https://dans.knaw.nl/en/about/organisation-and-policy/legal-information/DANSLicence.pdf
OpenAccess false
Representation
Language English
Resource Type Dataset
Format PDF; SAV; SAS; SPS
Discipline Agriculture, Forestry, Horticulture, Aquaculture; Agriculture, Forestry, Horticulture, Aquaculture and Veterinary Medicine; Life Sciences; Psychology; Social Sciences; Social and Behavioural Sciences; Soil Sciences
Spatial Coverage the Netherlands; Limburg; Noord-Brabant